Archive for May, 2010

K-nackered

It might be a while since I last posted but it doesn’t feel like much has happened.  Or has it?

I stayed up all night to watch the UK election results come in – and I’m still tired.

20100506 4am election night

Made Paul a birthday card and celebrated with his family in South Wales for a long weekend.

paul birthday popup

Blogged for International ME/CFS Awareness and collated a list of awareness blog posts at http://meaware.wordpress.com

20100512 me outside

Did some artwork in Journal #4 of the Creative for a Second travelling  journal project.

Spin ME 02

Tried to start eating more healthily (mainly lots more fruit), despite having discovered a love of baking and having made a few batches of biscuits (one for us, one for neighbours and one for my brother/sis-in-law-to-be).  And despite deciding in the last week to reintroduce wheat and gluten to my diet with the intention of taking celiac blood test in 6-8 weeks (which is leaving me bloated, gassy, knackered and feeling rather rough).

20100522 peaches socks and fly

Started a new commissioned painting (a secret for now) and done more work on the web site illustrations I have yet to complete for another client.

secret commission double r

Tried to spend some time outdoors in the fresh air getting some proper daylight and if possible warming my bones.  I also got 2 tomato plants and a broad bean plant from my sis-in-law-to-be which I am trying to tend to without much experience in these things.

me and fly

Also I’ve started reading books again, mainly at bedtime. I’ve finished a John Grisham, read Sh!t My Dad Says (very short book) and am starting on the first on the True Blood books as I loved the telly series.

Plus 1 haircut (at home with mobile hairdresser), 1 viewing of a house, 4 cleaning sessions and 1 gardening session by sis-in-law-to-be, 3 visits from parents, 1 new bottle of LDN chased/received and several early nights. Inbetween that lots of surfing, sleeping and feeling a bit crappy.

Paul, along with my brother and sis-in-law-to-be, bravely took the clutter mountain to a car boot sale last weekend and fabulously they made us £150.  I didn’t go along as it would have been too much for me.  We have about half the clutter left but that can start to go to the charity shop(s) bit by bit.

I still feel confident that LDN is helping despite having felt consistently tired and generally crappy especially this last week.  I’m also feeling fairly certain that gluten and/or wheat makes me feel pretty yucky when I have it everyday. 

At the weekend sis-in-law-to-be is coming over to watch Eurovision and poke fun at it with us. 

I’m also hoping to get out to one of the good farm shops with Paul so I can buy some jelly to hopefully stop my yearning to make my own (too much effort for me right now).  I’m very keen to taste rosehips and honeysuckle, but any kind of jelly would be good especially fruits I can’t really eat due to my IBS.

I’d also like a trip to the garden centre to buy canes to support my broad bean (being optimistic it will grow enough to need support!).  I might even buy some pretty plants for the garden if I can make my mind up as I am a bit clueless in this regard but have a willingness for some colour and to help the bees.

Oh and of course I must get some rest. Hmmm. Yes, rest.

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Plodding Along

Yep folks I’m plodding along.  Generally OK but still adjusting to the extra energy LDN is giving me which is giving a slight boom and bust on a day to day level.  But it’s not a crazy wild amount of energy or boom/bust.

I’m at the point where I’m saying that LDN is helping me.  It’s definately doing something, something positive.  Whether the improvement picks up I don’t know.  Whether I’m getting better but weakened from years of debility and need to gradually build up my strength I don’t know either.

But I do notice a change for the better overall.

It’s May and so I’ll be (hopefully) kept busy with bloggers doing posts for ME/CFS Awareness and keeping the http://meaware.wordpress.com blog and Facebook pages up to date.

Also the Creative for a Second journal will be with me soon.  Growler’s birthday is coming up (a visit to Wales and the inlaws is due).  Plus I still have some web artwork to finish for my client and 3 commissioned paintings in the pipeline. 

I’m getting swept up in the UK election and desperately wanting a change in British politics – although I’m phsyically anxious at the idea of a Conservative majority.  I’m hoping to stop up most of the night next Thursday to watch the results coming in.

Combined with a visit to the inlaws next weekend means I might be a bit of mess for ME/CFS International Awareness Day on the 12th May!

But that’s ME/CFS – it doesn’t stop just because there’s stuff you want or need to do.  So that might be my garbled message to tell the world.

LDN might be helping but it’s not a miracle drug for me.  No overnight remission for this gal.  If you want more detail about my LDN experience I’m keeping a weekly diary at Patients Like Me  but I’m only sharing it with members at the moment rather than have the whole world be able to see it.  If you sign up let me know and I’ll give you my username.

I will continue to report back here about my LDN use too.

In other news a sign of my improved energy reserves is I’ve started falling in love with baking.  Initially in an attempt to make treats that I could eat safely with my IBS but now also because baking something to give to others is so satisfying!  I’ve made 3 batches of biscuits, a vegan cake, 2 batches of scones and 2 lots of marshmallow crispies in the last month.  I just took delivery of a bun/tart tin so hoping to try wheat free pastry tarts next time I have the energy to do something.  Also maybe fairy cakes.

Baking and politics have been somewhat of a distraction from art.  But I’m starting to feel like the art groove is returning.  Just in time for the Creative for a Second journal and ME/CFS Awareness blogging arriving! Phew!  Maybe I will find something arty to contribute about ME/CFS this month after all.


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