Archive for January, 2010

LDN Day 55 – Dosage Experiment

Last time I wrote about LDN I was lowering the dose to 2ml nightly because I suspected the tiredness and low energy reserves I was experiencing were possibly due to the 3ml of LDN.

For the first week at 2ml it agreed with me very well in fact I felt positively perky the first few days. 

Now this period of taking 2ml does coincide with Christmas (tiring) and January (traditionally a poor health month since I’ve had ME/CFS). 

So the week after Christmas, the 2nd  week of 2ml, I didn’t feel the same perky benefits.  But there was a sense that maybe this could lead to better things.  Maybe with time I could increase activity slowly and boost where I am on the ME/CFS scale.

By mid January, still on 2ml, that had settled somewhat.  I wrote in my journal that I didn’t feel bad but I didn’t feel brilliant either.  I was a bit lacklustre. I was unproductive.  Maybe that’s a January thing.  or maybe it’s getting used to the 2ml and needing to increase the dose.

So. As I’m nearly due a new bottle of LDN and have only usedhalf of what I have I thought now was the time to try increasing the dose to try and ascertain if 2ml really is the optimal dose.

So on Day 41, the 15th January I upped the dose to 2.5ml and then 9 days later (this last Monday) I went up to 3ml. 

On Tuesday my IBS wasn’t so good and I got a pre-migraine sort of head.  Wednesday, Thursday and today I have been dancing with a migrainey head, neck/shoulder pain and IBS flaring.  Thursday the IBS got really bad and I was totally wiped needing a PJ day. 

Today, Friday, the neck and shoulder pain is still really bad, the IBS is not so good, the migrainey head is ever present and my gland pain in my neck is back.  This is normally only present on really bad days, after big exertion or before I started taking amitriptyline for pain relief.

As there was no big exertion to have triggered this I am concluding it’s side effects from the 3ml of LDN.

My quandry now is whether to carry on and see if side effects subside after a few weeks – but risk feeling rotten or even more rotten for a few weeks.  Or to lower the dose back to 2ml and accept that’s the optimal dose. Or is it?

With the neck, glands and migraine all I want is to take some co-codomal for some relief but I can’t take that with the LDN.  So I have to find a way to cope (again) with the pain. And the IBS.  Without knowing if it’s worth it. Sigh.

LDN Key Dates

5 Dec 2009 – First LDN bottle arrives

6 Dec 2009 – Day 1: Begin 3ml LDN in morning

9 Dec 2009 – Day 4: Switch to night time dosing of 3ml LDN

17 Dec 2009 – Day 12:  Reduce to 2ml LDN nightly

15 Jan 2010 – Day 41: Dose up to 2.5ml

24 Jan 2010 – Day 50: Dose up to 3ml

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LDN Day 30 – Ticking Along

It’s day 30 of me taking LDN.  The 2ml dose is agreeing with me well.

For the first 4 or 5 days at 2ml I felt postively perky.  Now not so much – but I don’t know if that’s because my reaction to LDN has changed or because of recovering from a busy Christmas.

I’m waiting for my new bottle of LDN to arrive.  Luckily I am not on the full dose or I would have run out by now.  Not sure if that’s a delay due to New Year post or if there’s a problem.

LDN Key Dates

5 Dec 2009 – First LDN bottle arrives

6 Dec 2009 – Day 1: Begin 3ml LDN in morning

9 Dec 2009 – Day 4: Switch to night time dosing of 3ml LDN

17 Dec 2009 – Day 12:  Reduce to 2ml LDN nightly


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