I can’t quite believe it! I have a prescription for LDN (Low Dose Naltrexone). And it was easy!
Here’s how I got hold of LDN for ME/CFS:
- I contacted www.e-med.co.uk to tell them I was interested in trying LDN for ME/CFS.
- They emailed me back to say they would need a letter from my regular treating physician (eg consultant or GP) confirming my diagnosis and stating that they are happy for me to try LDN. (I know this will be a sticking point for some people wishing to try LDN).
- I spoke to my Lovely GP on the phone who was happy to write a letter in which she gave my diagnosis as Chronic Fatigue Syndrome (CFS), said she was happy for me to try LDN, explained why she wasn’t able to precribe it for me (because she’s not allowed by her practice) and that this was due to a lack of evidence of it’s use with CFS. It took about a week to get the letter.
- I scanned the letter and emailed it to e-med.
- Then I registered with e-med (cost £20 for a year) filling out a short registration form where I was able to briefly explain my health problems. Within a few hours I had my PIN and password by email.
- I was then able to fill out the online LDN prescription request form. That was in the evening outside of normal working hours but within a few working hours of the next day (today) they had confirmed my prescription. You can ask e-med on the form to send you the paper prescription, send it to a pharmacy of your choice or they will be send it to Dickson’s Pharmacy in Glasgow who specialise in LDN prescriptions.
- I requested the prescription be sent direct to Dickson’s Pharmacy who are able to supply LDN mail order for around £15 a month for liquid or £27 a month for capsules. Be careful if you choose to use a local pharmacy – best to ask them to check the cost first as often it can be much more expensive.
So my LDN will come through the post in the next week!
Oh. My. Life!
I’m thrilled but also trying not to get my hopes up too much as it might not give me the improvement I hope for. But then again it might! OK I am just going to enjoy being excited and optmistic for now 🙂
My Lovely GP was happy that I had done my research and said she thought it was important to have the opportunity to try these things. And she’s also very keen to know if it works!
I’m concious that it could well worsen my symptoms initially so I’m a bit nervous about starting it when I have a painting to finish and Christmas coming up (you know how everything gets suddenly busy in December). But on the other hand having LDN seems a pretty good Christmas present to have.
I will keep you informed of course. Right now I am just enjoying the thrill of having access to a drug that gives some hope to people with ME/CFS (and Fibromylagia too). Whoop!