I Got a Prescription for LDN – Whoop Whoop Whoop!

I can’t quite believe it! I have a prescription for LDN (Low Dose Naltrexone). And it was easy!

Here’s how I got hold of LDN for ME/CFS:

  1. I contacted www.e-med.co.uk to tell them I was interested in trying LDN for ME/CFS.
  2. They emailed me back to say they would need a letter from my regular treating physician (eg consultant or GP) confirming my diagnosis and stating that they are happy for me to try LDN. (I know this will be a sticking point for some people wishing to try LDN).
  3. I spoke to my Lovely GP on the phone who was happy to write a letter in which she gave my diagnosis as Chronic Fatigue Syndrome (CFS), said she was happy for me to try LDN, explained why she wasn’t able to precribe it for me (because she’s not allowed by her practice) and that this was due to a lack of evidence of it’s use with CFS. It took about a week to get the letter.
  4. I scanned the letter and emailed it to e-med.
  5. Then I registered with e-med (cost £20 for a year) filling out a short registration form where I was able to briefly explain my health problems. Within a few hours I had my PIN and password by email. 
  6. I was then able to fill out the online LDN prescription request form. That was in the evening outside of normal working hours but within a few working hours of the next day (today) they had confirmed my prescription. You can ask e-med on the form to send you the paper prescription, send it to a pharmacy of your choice or they will be send it to Dickson’s Pharmacy in Glasgow who specialise in LDN prescriptions.
  7. I requested the prescription be sent direct to Dickson’s Pharmacy who are able to supply LDN mail order for around £15 a month for liquid or £27 a month for capsules. Be careful if you choose to use a local pharmacy – best to ask them to check the cost first as often it can be much more expensive.

So my LDN will come through the post in the next week!

Oh. My. Life!

I’m thrilled but also trying not to get my hopes up too much as it might not give me the improvement I hope for. But then again it might!  OK I am just going to enjoy being excited and optmistic for now 🙂

My Lovely GP was happy that I had done my research and said she thought it was important to have the opportunity to try these things.  And she’s also very keen to know if it works!

I’m concious that it could well worsen my symptoms initially so I’m a bit nervous about starting it when I have a painting to finish and Christmas coming up (you know how everything gets suddenly busy in December). But on the other hand having LDN seems a pretty good Christmas present to have.

I will keep you informed of course.  Right now I am just enjoying the thrill of having access to a drug that gives some hope to people with ME/CFS (and Fibromylagia too).  Whoop!


6 Responses to “I Got a Prescription for LDN – Whoop Whoop Whoop!”

  1. 1 ashysheela December 2, 2009 at 12:55 pm

    well done! i hope it brings some definite positive results – i am so interested to know how it goes – keep us updated!

  2. 2 cusp December 2, 2009 at 2:27 pm

    Wow ! Your determination and dogedness is brilliant. I do, do so hoep the LDN has a positive effect. I’m sure you will but do let us know how things go.

    Well done you ;0)

    P.S. Do you know Sue in the US who has used LDN ?

    Might be an idea to catch up with her


  3. 3 Hege December 2, 2009 at 4:17 pm

    I am waiting to hear more of your treatment and to see how it works.


  4. 4 Rachel M December 3, 2009 at 8:48 pm

    Congratulations! I’m keeping my fingers crossed for you. 😀

  5. 5 Jozephine December 6, 2009 at 9:48 am

    Thanks so much for all the hard work and for sharing the process with us. I’m watching with interest to see how you get on with it.

  6. 6 Seb December 6, 2009 at 5:18 pm

    When I started my antibiotics initially I felt like I got run over by a train and my pain got worse, for about a week or two. And any time I work my way up in the dosage I get the same feeling. Supposedly this is a good thing, means the meds are working, but if I didn’t know that I would’ve quit the treatment b.c it would’ve seemed counterproductive.

    Really hoping this new course of treatment helps!!!!

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Push It 11 Sep 2011

for ME Research

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