What a lot of letters. But it is (as expected) a no from my NHS GP for prescribing LDN for ME/CFS.
She was apologetic, bless her. But her hands are tied.
One good thing came from it though (which I need to back up with some bits of paper) and that was to let her know that the official person in their practice was mistaken in saying that you can’t get low dose Naltrexone in the UK without importing it and spending a lot of money. Because I’m assured you can get low dose LDN for a decent price if you know where to ask.
If you try to get it from a local chemist in the UK it may end up costing a fortune (like £350?! No joke!).
But there is a pharmacy in Glasgow who will provide it mail order for £15 a month for liquid or £27 for tablets (at time of writing).
You do of course need a prescription from a doctor for it first!
But I can let my GP and her official people know about this because if anyone goes to my practice with MS and asks for LDN they stand a much better chance of getting access to it.
Meanwhile I will now have to decide whether to pursue a private prescription for LDN. Which might involve having to travel for a consultation and certainly having to pay. But not crazy money and all quite possible.
My best option seems to be to go through this e-med service detailed on the LDN Research Trust’s forum
The money and possible travel for consultation is one thing for me to get past but I think it’s also the idea of being scrutinised for a diagnosis that makes me wary.
But what is fab is not only do I have my Lovely GP’s blessing to go and get a private prescription but she’s very keen to find out from me if it does indeed help.
I’ll leave any decision making to another day. But I expect I’ll be back on the internet within the hour assessing my options 😉