No watching Shakespeare in the Park for me today. An M.E. flare up distrupts the day.
Migraine, bowels playing up, stiffness in shoulders, swimming/ringing/thick head and feeling like someone has wrung me out. Not getting off to sleep until 2.30am (4th night in a row) and therefore not getting enough sleep either. Exhaustion pulsing sharply through the centre of my body into a dull roar by the time it reaches my finger tips.
Plus a morning of rain means the park/woodland where the play is on will mean transporting me in my wheelchair a soggy, sinking affair. Not to mention sitting in the cold damp for 2 hours or so.
Growler is en route to fetch mom over to our house. I wonder if she will still go and see my brother in action in the play.
It’s times like these I want to push through and show a resilient face. Not reveal the struggle to my mom and act as normal as I can (all things considered). But there’s just a little too much pain and too much exhaustion to fake it today. Faking it will only make the following days even worse – and I don’t want that.
So whilst I imagine it will be difficult to know I can’t go out today because of M.E. – in reality this is just one of a typical kind of day for me and my M.E. life. Sitting in the garden one day, crumpled and feeling sh!t the next.