As promised I’ve started taking D-Ribose and implemented my plan of action.
I’ve been taking daily three 5mg 5g doses of D-Ribose for a week now. I also introduced 200mg of Co-Enzyme Q10 and 500mg of L-Carnitine daily on top of the key suppliments I already take.
Two weeks ago I started making (even more) dietary changes to target my IBS problems following advice on helpwithibs.com – mainly to be stricter in avoiding dairy, red meat, chocolate, egg yolks, and carbonated drinks (having already reduced my dairy intake and spurred on by having terrible gastric problems after switching to scrambled eggs for breakfast).
The first two days of D-Ribose I could feel it having an effect – giving my body a boost and lifting fatigue levels. This came after a “good” week where I had been out a few times and had company for a few days. I was at a low ebb and the D-Ribose felt magical.
Then on day 3 I experienced some kind of gastric flare up due to … I don’t know what. Certainly D-Ribose is not supposed to have any side effects other than a risk of hypoglycemia and possibly loose bowels (definately not my problem!).
Having felt extremely naseous with the anti-oxidant N-Acetyl Cysteine in the past I stopped taking my one of my new suppliments Q10 just in case. I’ve had L-Carnitine 500mg in the past without problems so have persevered with it for the full week.
So on day three I felt as exhausted as I would have typically after the previous week’s exertions and without the D-Ribose. Am I getting the kick start I was promised? I’m not sure yet. But I’m giving it time. At least the 2-3 weeks that was suggested.
The gastric flare up has continued pretty much constantly – the only let off being Friday through to Saturday morning.
I’m utterly miserable with near constant discomfort, heartburn constipation and wind with the occasional reflux. And it’s exhausting to deal with. Sigh. Three weeks ago I’d concluded the eggs had triggered it. Now I have it even with the best IBS diet I’ve had ever before. It could just be a bad IBS flare, it could be some kind of virus, I could be detoxing or it could be something totally new requiring a visit to the doctor. All I know for certain is I’m fed up with it.
My world had started to expand a little since March when I finally shook off the Christmas virus. Now it’s gone very small again. Frustration led to a bout of only seeing the can’t-do stuff instead of my can-do stuff thinking. I didn’t blog then because … well what’s the point. I feel more optimistic now but still utterly miserable about my current symptoms.
The prospect of having to see a doctor to find out if this is something new (you know kidneys, gall bladder, undiagnosed bowel hell …) is not filling me with joy – especially as it always feels a gamble with CFS/ME to know if you’re going to get the correct answer or a ‘blame in on the CFS’ response.
OK. So this turned out to be more of a self pitying rant than a progress report – but if you avoid the glum bits you can still hear how the D-Ribose plan is going. Undecided and complicated by my stupid CFS riddled body.