Comments on: CDC Confirmation http://chronicallyme.wordpress.com/2008/05/07/cdc-confirmation/ Life with a chronic illness Wed, 09 Jul 2008 17:39:36 +0000 http://wordpress.org/?v=MU By: Matthew http://chronicallyme.wordpress.com/2008/05/07/cdc-confirmation/#comment-564 Matthew Fri, 09 May 2008 09:15:11 +0000 http://chronicallyme.wordpress.com/?p=137#comment-564 You might find these very interesting as well. "we've documented,as have others, that the level of functional impairment in people who suffer from CFS is comparable to M.S., AIDS, end stage renal failure..." http://www.youtube.com/watch?v=SYaCAcXD6ls http://www.youtube.com/watch?v=bCUvygbYdXs You might find these very interesting as well.
“we’ve documented,as have others, that the level of functional impairment in people who suffer from CFS is comparable to M.S., AIDS, end stage renal failure…”
http://www.youtube.com/watch?v=SYaCAcXD6ls
http://www.youtube.com/watch?v=bCUvygbYdXs

]]> By: rachelcreative http://chronicallyme.wordpress.com/2008/05/07/cdc-confirmation/#comment-563 rachelcreative Thu, 08 May 2008 10:03:35 +0000 http://chronicallyme.wordpress.com/?p=137#comment-563 It's staggering that so many doctors are still so confused (I'm being polite here). Didn't mean to get anyone worked up ;) I suppose it kind of makes me feel better that there's clear government guidance in the US and (in a bad way) relieved that things are just as muddy and messed up in the US as in the UK. Sometimes I think US sufferers think the Brits have a better approach to this illness - but we're just as messed up as the US when it comes to on the ground health care. Sigh. It’s staggering that so many doctors are still so confused (I’m being polite here).

Didn’t mean to get anyone worked up ;)

I suppose it kind of makes me feel better that there’s clear government guidance in the US and (in a bad way) relieved that things are just as muddy and messed up in the US as in the UK.

Sometimes I think US sufferers think the Brits have a better approach to this illness - but we’re just as messed up as the US when it comes to on the ground health care.

Sigh.

]]> By: Connie http://chronicallyme.wordpress.com/2008/05/07/cdc-confirmation/#comment-562 Connie Thu, 08 May 2008 01:11:08 +0000 http://chronicallyme.wordpress.com/?p=137#comment-562 When I asked a rhuematologist if I had this he told me that CFS is an old term for Fibromyalgia. Really?? That's news to me. When I asked a rhuematologist if I had this he told me that CFS is an old term for Fibromyalgia. Really?? That’s news to me.

]]> By: Nina http://chronicallyme.wordpress.com/2008/05/07/cdc-confirmation/#comment-560 Nina Wed, 07 May 2008 18:13:27 +0000 http://chronicallyme.wordpress.com/?p=137#comment-560 Yeah, we became legitimate in the eyes of the CDC several year ago. BFD. They keep doing studies to determine how many of us have it. I mean they do these same studies every year for the past 5 yrs. Also, when it turned out that $$ set aside for CFS research had been "shifted" to another department, we tried to make a big stink about it. Nothing happened. IOW, it's a beauraracy, just like the ones you and every other country has. Excuse the rant -- I'm a bit tired and crabby today:-) Yeah, we became legitimate in the eyes of the CDC several year ago. BFD. They keep doing studies to determine how many of us have it. I mean they do these same studies every year for the past 5 yrs. Also, when it turned out that $$ set aside for CFS research had been “shifted” to another department, we tried to make a big stink about it. Nothing happened. IOW, it’s a beauraracy, just like the ones you and every other country has.

Excuse the rant — I’m a bit tired and crabby today :-)

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